Congenital Heart Disease

About Congenital Heart Disease

Congenital heart disease (CHD), also called congenital heart defects, describes differences in how the heart formed before birth. These can take many shapes, such as holes between chambers, valve problems, heart muscle problems or narrow blood vessels. With advances in diagnosis, surgery and long-term care, most children born with CHD now live into adulthood. That means understanding CHD as a lifelong condition, not just a birth defect, is increasingly important.
Sloan as an infant in hospital bed

New Guideline on Managing CHD in Adults

A new guideline on managing congenital heart disease in adults from the ľ¹ÏÖ±²¥ and the American College of Cardiology includes updates on mental health, physical activity and pregnancy for patients.

Photo collage of adults with congenital heart disease who have shared their stories

NEW RESOURCE! Talk to your Children about Congenital Heart Disease

Congenital Heart Disease is complicated and can be hard to explain to the sibling of a child born with a special heart. The ľ¹ÏÖ±²¥ and the Children's Heart Foundation have created an animated video to help parents navigate these difficult conversations with siblings (and other young family members) to help them better understand how they can support a loved one living with congenital heart disease.

CHD Survivor Stories

Find stories from survivors and mothers about their experience living with congenital heart disease.
Baby Ziva smiling at the camera

Support That Empowers

Recovery becomes so much more manageable when you have the right kind of emotional support. Our online community of patients, survivors and caregivers is here to keep you going no matter the obstacles. We’ve been there, and we won’t let you go it alone.
graphic of man on laptop with super hero shadow

AHA and The Children's Heart Foundation

We have joined forces to help further lifesaving research for congenital heart defects.